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Sickle Cell Disease and Gene Therapies: A Two-Part Webinar Series

Join the U.S. Department of Health and Human Services (HHS) Office of Minority Health (OMH) and Office for Human Research Protections (OHRP) this September for “Sickle Cell Disease (SCD) and Gene Therapies: A Two-Part Webinar Series.” Hear from individuals with SCD, clinical researchers, community-based organizations, and state/federal partners as they discuss initiatives to build confidence and increase access to innovative, life-changing SCD treatments.

Part One: Trust, Clinical Trials, and Transformative Therapies: Ethical Pathways in Gene Therapy and Sickle Cell Disease

Thursday, September 18, 2025, 1-2:30 p.m. ET

Hosted by HHS OHRP, this 90-minute webinar will bring together individuals with SCD, clinical researchers, bioethics experts, and a community-based organization to explore how partners can collectively build confidence and trust around life-changing, novel SCD therapies.

Register Today for Part 1

Part Two: Innovations and Advances in Sickle Cell Disease Gene Therapies

Thursday, September 25, 2025, 2-3:30 p.m. ET

Hosted by HHS OMH, this 90-minute webinar will focus on the Centers for Medicare & Medicaid Services (CMS) Cell and Gene Therapy Access Model, which leverages outcomes-based agreements to reduce costs and increase access for eligible individuals enrolled in participating state Medicaid programs. This webinar will also include presentations from a state Medicaid director and a SCD Warrior who will share about their journey through gene therapy clinical trials.

Register Today for Part 2

Did you know?

September is National Sickle Cell Awareness Month! Visit the HHS OMH National Sickle Cell Awareness Month webpage for resources and information designed to help individuals and organizations raise awareness about SCD this September and throughout the year.