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September 4, 2024 | View as a webpage
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September is National Sickle Cell Awareness Month
National Sickle Cell Awareness Month serves as a time to promote awareness and education about sickle cell disease (SCD), reduce misinformation and stigmatization associated with the condition, and draw attention to the ongoing need for research, better patient care, new treatments, and widely available cures.
Since 2018, the National Heart, Lung, and Blood Institute (NHLBI) Cure Sickle Cell Initiative has accelerated promising genetic therapies to cure SCD, helped advance research, and brought together the SCD community—patients, advocates, caregivers, providers, researchers, industry, and others.
Visit the NHLBI Sickle Cell Disease website for more information, patient resources, shareable graphics, and social media messaging.
The 2024 Sickle Cell in Focus Conference will be held in-person in Kingston, Jamaica, and virtually September 19–20, at 9:00 a.m. ET.
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Be the #SourceForBetterHealth for Hispanic/Latino Communities X Chat
On Wednesday September 18, 2024, 2:00 – 3:00 pm ET, in honor of National Hispanic Heritage Month 2024, the U.S. Department of Health and Human Services (HHS) Office of Minority Health (OMH) invites you to join a bilingual X chat to discuss how social determinants of health (SDOH) impact the well-being of Hispanic/Latino communities and the efforts of our partners advancing health equity for Hispanics/Latinos.
Follow @MinorityHealth to follow the chat in English and @OMH_Espanol to follow the chat in Spanish and join us on September 18. Use the hashtag #SourceForBetterHealth to engage with our partners and answer questions about Hispanic/Latino health.
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Funding |
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Catalyst Fund
Grant from the Blue Cross Blue Shield of Massachusetts Foundation to help community-based organizations strengthen their capacity to expand access to health care in Massachusetts.
Ongoing review.
Health and Health Care Disparities Among Persons Living with Disabilities
Grant from the NIH to support novel and innovative research that examines and/or intervenes upon the underlying and multilevel causes, pathways, and factors adversely impacting the health and well-being of persons living with one or more disabilities among populations experiencing health disparities.
Deadline is October 5.
Engineering Durable HIV Vaccine Responses
Grant from the NIH to support basic and applied research to understand and improve durable immune responses to candidate HIV vaccines. Deadline is October 9.
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Long-Term Effects of Disasters on Healthcare Systems in Populations with Health Disparities
Grant from the National Institutes of Health (NIH) to support collaborative research focused on understanding the long-term effects of natural and/or human-made disasters on health care systems serving populations that experience health disparities living in the United States and its territories.
Deadline is October 5.
Nutrition Obesity Research Centers
Grant from the NIH to support an organization that proposes to establish core centers that are part of an integrated and existing program of nutrition and/or obesity research.
Deadline is October 9.
Improving Mortality from Prostate Cancer Together (IMPACT) Request for Applications
Initiative from the American Cancer Society to help fund research projects focused on reducing prostate cancer mortality and improving outcomes with priority given to applications with direct relevance to reducing health disparities in prostate cancer mortality.
Deadline is October 15.
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Webinars and Other Events |
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NIH Obesity Research Task-Force Symposium: Obesity and Heart Disease
Webinar hosted by the National Institute of Diabetes and Digestive and Kidney Diseases.
September 13, at 9:00 a.m. ET.
Register by September 12.
Ending the HIV Epidemic in the United States, First Steps for Health Centers
Webinar hosted by Health Center Excellence Academy.
September 12, at 12:00 p.m. ET.
Implementing Patient-Reported Outcomes and Psychosocial Interventions in Diverse Communities of Cancer Survivors
Webinar hosted by the National Cancer Institute.
September 17, at 2:00 p.m. ET.
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Supportive Services in an Oncology Practice: Meeting the Patients Where They Are
Webinar hosted by the American Medical Association.
September 12, at 11:00 a.m. ET.
Infection Prevention and Control Practices: Addressing Respiratory Hygiene and Cough Etiquette
Webinar hosted by the National Council of Urban Indian Health.
September 12, at 2:00 p.m. ET.
HHS Inaugural Sickle Cell Disease Summit
Summit hosted by U.S. Department of Health and Human Services (HHS).
September 24, at 9:30 a.m. ET.
In-person in Washington, D.C.
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Resources |
Reframing Health Disparities in Rural America: A Communications Toolkit
The Reframing Health Disparities communications toolkit from FrameWorks Institute helps public health professionals communicate more effectively about how to eliminate disparities through sound public health approaches.
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Reducing Barriers, Improving Outcomes: Using Federal Opportunities to Expand Health Care Access for Individuals with Limited English Proficiency
Breakdowns in communication between health care providers and patients with limited English proficiency result in increases in both unnecessary care due to misdiagnoses and poor health outcomes. This report from the U.S. National Immigration Law Center details the clear and actionable policy interventions that Congress and federal agencies can take to address these health disparities.
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Patient and Community Engagement Resources
The Patient and Community Engagement Tip Sheets and accompanying worksheets from the NIH Helping to End Addiction Long-term® (HEAL) Initiative are designed to equip researchers with tools to engage with people who have lived experience and community members effectively. Download the tip sheets to learn how to plan for patient and community engagement, best practices for fostering genuine relationships, and how to disseminate findings in a meaningful and impactful way.
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Clinical Trials |
CHOICES3: Sickle Cell Disease Parenting CHOICES
his study, sponsored by the University of Florida in collaboration with the National Human Genome Research Institute, will use web-based data collection to compare the effects of e-Book and CHOICES interventions on knowledge and behaviors across time. This study will take place in Gainesville, Florida,
Telemedicine for Children with Sickle Cell Disease
This study, sponsored by Indiana University in collaboration with the National Heart, Lung, and Blood Institute, aims to learn more about how the use of two different types of telemedicine can address barriers to receiving comprehensive sickle cell care, and whether care can be improved. This study will take place in Indianapolis, Indiana.
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Workforce Development |
Postdoctoral Fellowships
The American Cancer Society’s Postdoctoral Fellowships support new investigators in research training programs to position them for independent careers in cancer research. As part of their evaluation, peer reviewers consider how well the fellowship will broaden the applicant’s research training and experience.
Introduction to Trauma-Informed Care for Post Overdose Outreach Teams
This course from the National Center for Injury Prevention and Control aims to equip first responders and post-overdose outreach teams with the background and tools to implement a trauma-informed response when interacting with a person who has experienced an overdose.
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Knowledge Center |
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Recommended Reading
In honor of National Sickle Cell Awareness Month, the OMH Knowledge Center is sharing Facts About: Sickle Cell Disease. This fact sheet from The Blood Center gives an overview of what sickle cell disease is, what causes it, how it is diagnosed, whom it affects, and how blood donors can help.
You can access this free resource through the online catalog here.
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