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September 6, 2023 | View as a webpage
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September is National Sickle Cell Awareness Month
National Sickle Cell Awareness Month serves as a time to recognize the perseverance of patients living with sickle cell disease (SCD) and to recommit ourselves to improving the quality of life and health outcomes for all individuals living with the disease.
Since 2018, the National Heart, Lung, and Blood Institute (NHLBI) Cure Sickle Cell Initiative has accelerated promising genetic therapies to cure SCD, helped advance research, and brought together the SCD community—patients, advocates, caregivers, providers, researchers, industry, and others.
Visit the NHLBI Sickle Cell Disease website for more information, patient resources, shareable graphics, and social media messaging. Also, be sure to check out the OMH Knowledge Center's 2023 Sickle Cell Disease Reading List, featuring consumer materials, reports, and research articles.
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Funding |
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Research Network to Promote Multidisciplinary Mechanistic and Translational Studies of Sickle Cell Disease Pain
Cooperative agreement from the National Institutes of Health (NIH) to support a research network that promotes multidisciplinary mechanistic and translational studies of sickle cell disease pain.
Deadline is October 1.
Interventions to Expand Cancer Screening and Preventive Services to ADVANCE Health in Populations that Experience Health Disparities
Grant from the NIH to improve access to cancer screening and prevention services for underprivileged populations by identifying and overcoming obstacles that prevent them from using these services.
Deadline is October 5.
National Institute of Nursing Research Areas of Emphasis for Research to Optimize Health and Advance Health Equity
Grant from the NIH to support nursing research projects that take a comprehensive approach to studying health, address health challenges facing the nation with constructive solutions, and use innovative and rigorous research methods to inform policy and practice.
Deadline is October 5.
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Community-Engaged Health Equity Research in Neuroscience Initiative
Grant from the NIH to determine best practices when conducting community-engaged health equity research in populations that experience health disparities.
Deadline October 4.
Effectiveness of School-Based Health Centers to Advance Health Equity
Grant from the NIH to support research investigating the effectiveness of school-based health centers as a model to meet the needs of school-aged children from populations that experience health disparities.
Deadline is October 5.
Rural Health Grant
Grant from MultiPlan provides financial resources that help healthcare providers in rural areas introduce or expand services, education, screenings, and other programs aimed at improving the health of people in their communities.
Deadline is October 6.
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Webinars and Other Events |
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Centering Communities in Dissemination Research to Promote Health Equity
Workshop hosted by the National Heart, Lung, and Blood Institute.
September 19, at 11:00 a.m. ET.
Expanding Dementia Capability in Indian Country
Webinar hosted by the National Alzheimer's and Dementia Resource Center.
September 20, at 3:00 p.m. ET.
Sickle Cell Data Collection Summit
Virtual summit hosted by the Centers for Disease Control and Prevention.
September 26-29, at 2:00 p.m. ET.
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Strategies to Increase Access to Mental Health Services in Farm Worker Communities in Post-COVID Era
Webinar hosted by the AgriSafe Network.
September 20, at 2:00 p.m. ET.
Rural Health Clinic Conference
In-person conference hosted by the National Rural Health Association.
September 26-27, in Kansas City, Missouri.
From Policy to Practice: Sustaining Lessons Learned for Community Engagement in COVID-19 Testing Equity
Workshop hosted by the NIH RADx-UP Coordination and Data Collection Center.
September 27-28, at 12:00 p.m. ET.
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Resources |
New Ending the HIV Epidemic in the U.S. Fact Sheet Highlights Initiative Accomplishments
HIV.gov has added a new fact sheet to their Ending the HIV Epidemic in the U.S. (EHE) initiative with content from the Centers for Disease Control and Prevention (CDC).
The fact sheet highlights the accomplishments of EHE funding recipients and how they impacted the four science-based strategies to end the epidemic: diagnose, treat, prevent, and report.
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Learn More Breathe Better® Addresses Asthma in Minority Communities
1 in 13 people in the U.S. are affected by asthma but rates vary by community and within communities. Black people and American Indian/Alaska Native people have the highest asthma rates of any racial or ethnic group, according to the CDC.
The Learn More Breathe Better® initiative from the National Heart, Lung, and Blood Institute includes information that addresses asthma rates and resources tailored to different minority communities. Use their social media assets, infographics, and messaging to raise awareness of the disparities in asthma rates.
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New Administration for Children and Families Resource Guides
The Administration for Children and Families (ACF) released new resource guides to help communities connect to ACF programs that may be able to assist them. Each guide is geared towards a specific hard-to-reach population to help community partners connect consumers with ACF programs. Some of the resource guides are available in Spanish, Arabic, and Vietnamese, among other languages.
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New Issue: Public Health Reports
The Office of the U.S. Surgeon General and the U.S. Public Health Service released a new issue of their official journal Public Health Reports. This issue includes articles on mass incarceration as a driver of health inequality, mental health outcomes for transgender women with HIV, and more.
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Clinical Trials |
Gerofit Exercise Intervention for Older Adults with Sickle Cell Disease
This study, sponsored by Duke University in collaboration with the National Institutes of Health, will assess the feasibility, acceptability, and safety of a personalized exercise training program adapted from Gerofit to improve physical health and quality of life for adults with sickle cell disease. This study will be conducted in Durham, North Carolina.
CHOICES3: Sickle Cell Disease Parenting CHOICES
This study, sponsored by the University of Florida in collaboration with the National Human Genome Research Institute, will determine the efficacy of web-based education for individuals with sickle cell disease (SCD) compared with eBook education in measuring levels of knowledge about SCD reproductive health topics. This study will be conducted in Gainesville, Florida.
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Workforce Development |
Foodborne Outbreak Investigation Online Series
The Foodborne Outbreak Investigation Online Series from the Tennessee Food Safety Center of Excellence is an online self-paced training that promotes a multi-disciplinary approach to the investigation of foodborne disease outbreaks. Each course offers a certificate of completion and continuing education credits through the University of Tennessee Knoxville.
Sickle Cell Disease Fellowship Program
The Sickle Cell Disease Fellowship Program at St. Jude Children's Research Hospital provides applicants with a strong clinical foundation in transfusions, transplantation, and more. Trainees will gain experience in inpatient and outpatient rounds and perform research during their one-year fellowship.
Applications accepted on a rolling basis.
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Knowledge Center |
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Recommended Reading
In honor of National Sickle Cell Awareness Month, the OMH Knowledge Center is featuring a collection of recent journal articles related to sickle cell disease. These articles highlight current topics in sickle cell disease research, including pregnancy and childbirth, COVID-19, chronic pain, research equity, heart disease, and more.
You can access these free resources through the online catalog here.
Looking for more information on a topic included in this collection? View our search tips page for guidance on searching the online catalog.
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