Read the Latest Outreach Connection from NIMH: Summer 2016

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GREETINGS

Diana Morales, Director 
NIMH Outreach Partnership Program

NIMH OPP Meeting Room Overview

 

It was wonderful to see you at the annual meeting! It’s always the highlight of our year to be able to see the Partners in person, share research updates with you, and hear about the work you are doing in your communities. This issue of Outreach Connection features highlights from the annual meeting, including examples of how a number of Partners have incorporated meeting information into various activities after returning from the meeting. Keep those examples coming! We are in the process of going through the meeting evaluation forms to capture your ideas as we begin thinking about next year’s meeting and planning for other activities throughout the year. Thank you for taking the time to give us your feedback!

As we move into the fall months, NIMH will be rolling out a number of updated publications, including several brochures on depression that can be used to support National Depression Screening Day activities in October. In September, NIMH will release a number of resources to mark National Suicide Prevention Month, including updated NIMH webpages on Suicide Prevention and Suicide Statistics and a new suicide prevention fact sheet. We also will join the National Suicide Prevention Lifeline’s social media efforts to promote the “#BeThe1To” campaign highlighting what each of us can do to help someone in crisis, including a Twitter Chat on September 9 at 1 pm ET to mark World Suicide Prevention Day. We encourage you to check out the resources available for community education and to join us in getting one of the following messages out each week of the month to raise awareness of this important initiative: 

  • BeThe1To ASK, 
  • BeThe1To KEEP THEM SAFE, 
  • BeThe1To BE THERE, 
  • BeThe1To HELP THEM CONNECT, and 
  • BeThe1To FOLLOW-UP.

NIMH also will recognize PANDAS/PANS Awareness Day on October 9, which you heard about at the 2015 Outreach Partnership Program annual meeting. Awareness of Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) and its related syndrome Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) is growing and we hope you will join us this year to get the word out.

Finally, in case you have not heard the news, we are pleased to report that NIMH has a new director, Dr. Joshua Gordon from Columbia University and the New York State Psychiatric Institute, who will join the Institute in mid-September. We are looking forward to the Partners having the opportunity to meet him at next year’s annual meeting! 


PARTNER SPOTLIGHT

Partners Meet and Dialogue at Annual Meeting

NIMH OPP Meeting Question and Answer

In July, representatives from the Outreach and National Partner organizations met on the National Institutes of Health (NIH) campus for the NIMH OPP 2016 annual meeting to hear updates from NIMH and NIMH-supported researchers and to learn from their fellow Partners. In addition to hearing from Acting Institute Director Dr. Bruce Cuthbert, participants heard research updates on predicting risk for psychosis, preventing suicide, shortening the duration of untreated psychosis, and transforming depression treatments. Partners reported leaving the meeting inspired by the hopeful research developments.

Addressing Disparities

Stacie Hiramoto

The meeting featured Partner efforts to address mental health disparities in their communities. A panel led by Dr. Charlene Le Fauve, Deputy Director of the NIMH Office for Research on Disparities and Global Mental Health, discussed approaches to improving access to care through the engagement of communities. Dan Aune, Executive Director of MHA Montana, shared activities to assist tribal communities in developing and implementing sustainable and culturally appropriate mental health care systems, and Stacie Hiramoto, Director of the Racial and Ethnic Mental Health Disparities Coalition at MHA California, described the California Reducing Disparities Project, a statewide initiative to improve access to quality care, and increase positive outcomes for racial, ethnic, and cultural communities.

In a breakout session, NAMI Maine and NAMI Iowa shared how they are building partnerships and collaborations across multiple sectors to help support justice-involved individuals with serious mental illness. In addition, NAMI Connecticut described a collaboration to develop a Spanish-language curriculum to raise awareness about the impact of domestic violence, trauma, and mental health in Latino communities.

NIMH Partner Sharing Session

Partner Sharing

Over 30 Partners and other organizations shared their education and outreach activities in the Partner Sharing Session, a hands-on opportunity to learn how others are disseminating research and educating the public in their states. One Partner noted that during the session "many doors opened" for “potential collaboration and continued communication with these invaluable resources throughout the country.“

Extending the Reach

Many Partners indicated that the meeting inspired them to find new ways to share NIMH research. In fact numerous attendees used the #NIMHOPP2016 Twitter hashtag to share highlights from the meeting. 

NAMI NYS Tweet Trauma Focused CBT

NAMI New State tweets about trauma-focused cognitive behavioral therapy.

NAMI NH ECT

Ken Norton of NAMI New Hampshire shares about latest research on electroconvulsive therapy (ECT).

NAMI NJ Facebook Post  

NAMI New Jersey shares risk factors for psychosis on Facebook.

Partners continue to share meeting highlights:

Thanks to all the Partners for their contributions to a successful meeting!

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Getting Research and Resources Out

Outreach Partners have been disseminating NIMH materials and research findings throughout their states.

Arizona State University's Center for Applied Behavioral Health collaborated with MHA Arizona to publish a supplement on mental health in the Arizona Republic. NIMH research was incorporated into the stories.

MHA Illinois distributed NIMH pamphlets on suicide and depression at a conference for construction industry executives, geared toward educating employers about suicide and depression among construction workers.

MHAL Interview  

MHA Louisiana highlighted the availability of NIMH publications at a health fair in an interview with a local news reporter during May is Mental Health Month.

NAMI Maryland is promoting suicide resources, including NIMH information in observance of National Suicide Prevention Month.

NIMH Video on PTSD

MHA of Southeastern Pennsylvania (MHASEP) has compiled a selection of NIMH videos on a new webpage for NIMH behavioral health condition and recovery videos.

FFSC Event  

Federation of Families of South Carolina (FFSC) distributed the NIMH postpartum depression brochure at a community “baby shower” event for pregnant mothers.  

NAMI SD Facebook Post

NAMI South Dakota shared a new video about NIMH-funded research findings about mapping the human brain.

MHA Middle TN Linkedin

MHA of Middle Tennessee is posting NIMH information on LinkedIn.

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Tailoring Content

Outreach Partners often repurpose NIMH information to include in materials they create for educational efforts in their communities.

MHA CO PPT Slide

MHA of Colorado incorporated data from the NIMH website into community presentations about youth mental health.

Nevada PEP included NIMH statistics about mental health on signs posted at local collaborating organizations on National Children's Mental Health Awareness Day.

NAMI Vermont has incorporated NIMH information in its "Mental Illness and Recovery" workshop curriculum. In addition, NIMH booklets on bipolar disorder, depression, and schizophrenia are distributed in this workshop for peers, their family members, and friends.

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Promoting Research Opportunities

Partners are educating their communities about the importance of research and the research process.

NAMI Iowa’s constituents learned directly about a local study seeking participants at its annual conference. NIMH grantee, Dr. Jacob Michaelson from the University of Iowa, presented about clinical trials the university is involved with generally, including the purpose of the study and eligible participants for a study he is conducting about autism spectrum disorders. 

NAMI Ohio PPT Slide about trials

NAMI Ohio informs the public about NIMH-funded clinical trials by incorporating a slide about clinical trials and NIMH into community presentations.

MHA Texas Tweet

MHA Texas uses Twitter to encourage constituents to learn about NIMH-funded clinical trials.

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Educating the Public about Research

Outreach Partners are informing their communities about NIMH-funded trials actively recruiting participants.

NAMI NJ Video Interview

To help educate its members about research, NAMI New Jersey created a video interview of a mother sharing her family’s experience participating in an NIMH study.

MHANKSO created a cable show episode with a local researcher to educate the public about clinical research.

NIMH Clinical Research and You Fact sheet  

NAMI Minnesota distributed copies of the NIMH Clinical Research Trials and You fact sheet at the Minnesota Social Services Association conference.

MHASEP links to the NIH Clinical Research Trials and You website in the fact sheet it created to educate its constituents about what to expect from participating in clinical research.

FFSC Blog Post

The FFSC re-purposed content from the NIMH Clinical Trials webpage in a blog post to educate family members about clinical research. 

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Outreach Connection is a service of the National Institute of Mental Health's (NIMH) Outreach Partnership Program (OPP).

Summer 2016


New NIMH Resources about ADHD

NIMH Adult ADHD Brochure

The new brochure, Could I Have Attention-Deficit/Hyperactivity Disorder (ADHD)?explains how ADHD affects adults, including signs and symptoms, how it is diagnosed, and treatment options.

An updated version of ADHD Basics is available. This brochure focuses on basic information about ADHD in both children and adults, including what it is, signs and symptoms, causes, treatments, and how to find help.


New NIMH Video

NIMH Video Image

In this new video, former NIMH Deputy Director Dr. Richard Nakamura reveals how his Asian American family successfully coped with severe mental illness compounded by discrimination.


New NIMH Resources on First Episode Psychosis

NIMH RAISE Image

Two new fact sheets are available in English and Spanish to educate the public about first episode psychosis (FEP).

Early Warning Signs of Psychosis lists changes in behavior before psychosis develops that may be early warning signs of psychosis.

First Episode Psychosis lists facts about psychosis in general and specifically FEP, as well as a variety of treatments.


Now on the NIMH Website

NIMH has released the following new webpages:

Find updates on these webpages:


Upcoming Observances & Resources

National Suicide Prevention Month
September 2016
Check out these NIMH suicide prevention fact sheets and publications.

Recovery Month
September 2016
Use the Recovery Kit resources in your Recovery Month activities.

National Wellness Week
September 11-17, 2016
Take a look at Federal resources to support this week.

ADHD Awareness Month
October 2016
Check out NIMH resources on ADHD, including the new brochure about ADHD in adults.

National Bullying Prevention Month
October 2016
Check out Federal resources about bullying on the StopBullying.gov website.

Mental Illness Awareness Week 
October 2-8, 2016
NIMH has a number of materials and resources to support this week's activities.

PANDAS/PANS Awareness Day
October 9, 2016
Share NIMH facts and research about PANDAS/PANS.


Tackling Disparities

Partners are using NIMH materials and research in their efforts to address mental health disparities..

Massachusetts Association for Mental Health distributed NIMH publications at a stakeholder conference on enhanced health services and case management supports for refugees from East Africa, Burma, and Iraq.

NAMI South Dakota provided NIMH materials at trainings with tribal health leaders, women's shelters, parents, and other stakeholders on two Indian reservations in the state, Pine Ridge and Rosebud. 


Taking Research to the Community

Partners provide opportunities for NIMH scientists and grantees to present their findings at local and national meetings and conferences.

MHA of Middle Tennessee invited NIMH grantee Dr. Warren D. Taylor with Vanderbilt University Medical Center to present about depression in later life at its annual behavioral health and aging conference.

During the Research Plenary at the NAMI National Convention, NIMH Division of Translational Research Director Dr. Sarah Lisanby presented research advances in brain stimulation therapies for depression, and grantee Dr. Steven McCarroll spoke about the latest genetic research on schizophrenia


National Partner Activities

The American Psychiatric Association blogged about the role of clinical research and why people participate in studies, and linked to the NIMH Clinical Trials webpage.

To highlight facts about eating disorders, the Academy for Eating Disorders led a collaboration of organizations in creating a video based on a talk at NIMH by leading expert and NIMH grantee Dr. Cindy Bulik during which she debunked nine myths about eating disorders.

The Dana Foundation interviewed incoming NIMH Director Dr. Joshua Gordon for a blog post about his new role.


First Episode Psychosis Outreach

Thanks to all the Partners promoting FEP programs and NIMH Recovery After an Initial Schizophrenia Episode (RAISE) findings.

National Council RAISE Tweets

The National Council for Behavioral Health live tweeted RAISE findings that were presented at a White House mental health event.

The NAMI National Convention featured a major topic symposia on the public health imperative of early psychosis programs in which the presenters shared RAISE findings.

The Schizophrenia and Related Disorders Alliance of America described findings from the NIMH RAISE study in a blog post


Studies Seeking Participants

NIH Clinical Center

The NIMH Intramural Program in Bethesda, MD is seeking participants for the following trials. Spread the word.

Depression Research Studies Enrolling Participants

Several studies are identifying the physical traits of adult depression and investigating medications that rapidly reduce symptoms.

Descriptive Study of Severe Irritability

(Outpatient: 1-day evaluation, and may include follow-up visits until age 25) This study describes, over time, the moods and behavior of children and the associated brain changes. Participants must be in treatment with a physician, medically healthy, and not currently hospitalized, psychotic, or suicidal. Symptoms include chronic anger, sadness, or irritability, along with hyperarousal (such as insomnia, distractibility, hyperactivity) and extreme responses to frustration (such as frequent, severe temper tantrums). The study procedures include research and computer tasks, neuropsychological testing, and brain imaging. Recruiting ages 7-17. [02-M-0021]

Schizophrenia and Genetics

(Outpatient: 1-2 days) This study examines the role genes play in schizophrenia. Eligible participants have a diagnosis of schizophrenia and no serious drug or alcohol abuse. If possible, the siblings and/or parents of the individuals are invited for interviews and blood donation. Travel and lodging assistance may be available. Recruiting ages 18-55. [95-M-0150].


About the Program

The Outreach Partnership Program, a nationwide initiative of the National Institute of Mental Health Office of Constituency Relations and Public Liaison (OCRPL), works to increase the public’s access to science-based mental health information through partnerships with national and state organizations. The program consists of 55 Outreach Partners representing every state, the District of Columbia, and Puerto Rico, as well as over 80 National Partner organizations, including professional, consumer, advocacy, and service-related organizations with a nationwide membership and/or audience.


Comments?

The Outreach Connection provides a vehicle to share how the Outreach  and National Partners are disseminating NIMH research across the country. If you have feedback about the newsletter, please contact NIMHPartners@mail.nih.gov