Special BTAM Recap Edition 2023: Rare Brain and Spine Tumor News and Updates

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NCI-CONNECTions: A Rare Brain and Spine Tumor Blog

Special Brain Tumor Awareness Month Recap Edition

OCS Webinar

Advancing the Science of Survivorship in Neuro-Oncology

During a webinar on May 2, NCI-CONNECT co-leader Terri Armstrong, Ph.D., joined other experts to discuss the importance of improving survivorship care for brain and spine tumor patients, what her team has learned so far, and the existing research gaps. Read more >

Bringing the Patient, Caregiver, and Advocate Voice to Neuro-Oncology Clinicians and Researchers

Adam Hayden

On May 5, the NCI Center for Cancer Research’s Neuro-Oncology Branch held the inaugural Survivorship in Neuro-Oncology Visiting Scholar Lecture. Adam Hayden, a survivor, and Kimberly Wallgren, a caregiver, shared their perspectives on survivorship and person-centered care. Read more >

Neuro-Oncology Branch Hosts Art Exhibition in Honor of Brain Tumor Awareness Month

BTAM art exhibit

In honor of Brain Tumor Awarness Month, neuro-oncology staff were invited to submit artworks that speak to their experience working in neuro-oncology through a variety of perspectives. This exhibit focused on themes of community and connection within the field. View the artwork >

Celebrating Ependymoma Awareness Day

Gilbert Butterfly Release

On May 8, the brain tumor community gathered to commemorate Ependymoma Awareness Day. This highlight video features stories from the ependymoma community—as well as an inspiring talk from NCI Neuro-Oncology Branch Chief Mark Gilbert, M.D. Watch the video >

Clinical Trial Enrolling: Nivolumab for Patients with IDH-Mutant Gliomas

Nivo for IDH Glioma-2

Researchers are testing a treatment in adults with recurrent IDH1- or IDH2-mutated gliomas. The study investigates if the immunotherapy drug nivolumab is an effective treatment for people with recurrent IDH-mutant gliomas with and without hypermutator phenotype. Read more >