Rare Brain and Spine Tumor News and Updates

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nci-top_crop_purpleNCI Connections

NCI-CONNECTions: A Rare Brain and Spine Tumor Blog

PXA MRI

PXA / APXA

Pleomorphic xanthoastrocytoma (PXA) and anaplastic pleomorphic xanthoastrocytoma (APXA) tumors can be slow- or fast-growing tumors in the central nervous system. They occur most often in young adulthood. Learn more about PXAs and APXAs.

Provider Spotlight: Dr. Brett Theeler

Brett Theeler

Army Neurologist Helps Provide Multidisciplinary Care to Rare CNS Tumor Patients

Read how Dr. Brett Theeler is helping treat and educate patients with PXA and APXA tumors, which are among the rarest of rare brain and spine cancers.

Patient Spotlight: Darien

Darien

PXA Tumor Survivor Starts Life Over After Learning He Was Misdiagnosed

Darien shares how he lived with what he thought was an aggressive brain cancer for eight years. Then, he got an accurate low-grade rare tumor diagnosis and made a fresh start.

Advocate Spotlight: NBTS

David Arons

National Non-profit Unites and Empowers the Brain Tumor Community

Read how a national advocacy organization has helped unify and mobilize a community to advance care and knowledge for brain tumor patients and their families.

Events

NCI-CONNECT Meetings

NCI-CONNECT hosts meetings at NIH throughout the year to bring together worldwide leaders in neuro-oncology to advance knowledge and collaborations to discover better treatments for people with CNS cancers. Learn more about our meetings.

Ependymoma Consensus

Participants discussed the latest in grading and diagnosing ependymoma, molecular and genetic testing, and clinical care and treatments for ependymoma. Read the meeting summary.