NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
PXA / APXA
Pleomorphic xanthoastrocytoma (PXA) and anaplastic pleomorphic xanthoastrocytoma (APXA) tumors can be slow- or fast-growing tumors in the central nervous system. They occur most often in young adulthood. Learn more about PXAs and APXAs.
Darien shares how he lived with what he thought was an aggressive brain cancer for eight years. Then, he got an accurate low-grade rare tumor diagnosis and made a fresh start.
Read how a national advocacy organization has helped unify and mobilize a community to advance care and knowledge for brain tumor patients and their families.
NCI-CONNECT hosts meetings at NIH throughout the year to bring together worldwide leaders in neuro-oncology to advance knowledge and collaborations to discover better treatments for people with CNS cancers. Learn more about our meetings.
Participants discussed the latest in grading and diagnosing ependymoma, molecular and genetic testing, and clinical care and treatments for ependymoma. Read the meeting summary.
NCI-CONNECT aims to advance the understanding of rare adult central nervous system (CNS) cancers by establishing and fostering patient-advocacy-provider partnerships and networks to improve approaches to care and treatment.