New Autoimmune Brain Disorders Program highlights patient inclusion and interdisciplinary collaboration
The NIH Clinical Center is home to a new Autoimmune Brain Disorders Program that highlights patient inclusion and interdisciplinary collaboration.
Many patients with autoimmune brain disorders may be perceived as “too sick” for a traditional psychiatry inpatient unit and “too psychiatrically complex” for a general pediatric unit. In the past, many studies excluded this group of patients from research leaving them very few options for care or to find out more about their illness.
Now, a new team within the Clinical Center will be able to serve pediatric patients with this condition. The National Institute of Mental Health Autoimmune Brain Disorders Program officially launched in the 1SW unit under the leadership of Medical Director Dr. Gena Mooneyham, a pediatrician and child psychiatrist by training.
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The National Institutes of Health Clinical Center was among six medical centers recognized with the NDNQI (National Database of Nursing Quality Indicators) Award for Outstanding Nursing Quality for “elevating nursing excellence, and in turn, improving patient outcomes.”
“We are honored to be recognized for the commitment and dedication to patient safety and excellent patient care demonstrated every day by our clinical research nurses and inter-professional colleagues. This is a significant achievement for Clinical Center and IC staff members,” said Dr. Barbara Jordan, acting chief nursing officer for the hospital.
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Patient talks about her decade in the UDP
 Louise Benge has been participant in the NIH Undiagnosed Diseases Program for the past decade.
Imagine visiting your doctor and having them tell you they have never seen symptoms like yours in their entire medical career. For thousands of Americans, this is their everyday reality.
The NIH Undiagnosed Diseases Program (UDP) focuses on the most challenging medical cases referred to the Clinical Center. The initiative originated in 2008 from the National Human Genome Research Institute, the NIH Office of Rare Diseases Research and the NIH Clinical Center to study previously unknown or otherwise puzzling conditions that resist diagnosis, are considered undiagnosed and some qualify for further study.
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