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HRA Latest - February 2024 |
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Welcome to HRA Latest, with news and updates for those working or involved in health and social care research.
This month, we're pleased to tell you more about Make it Public. As part of our campaign to improve research transparency, we'd love you to join our workshop to look at how the research community can work together to improve registration rates of clinical trials.
You can also read our response to the World Medical Association's consultation on the Declaration of Helsinki, as well as what we are doing in response to the Tickell review into research bureaucracy.
Finally, hear more from Lou Silver, our Equality, Diversity and Inclusion Manager, about the work the HRA is doing to support LGBTQ+ equality in light of LGBT+ History Month.
As always, for regular updates and the latest news, you can follow us on X @HRA_Latest.
Matt Westmore Chief Executive
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Make it Public Week 2024
Make it Public is a campaign dedicated to research transparency, founded on the Make it Public strategy. Our vision is that trusted information from health and social care research studies is publicly available for the benefit of all.
For #MakeitPublic Week 2024, we’re focusing on increasing research registration rates.
We know that two thirds of the UK public would feel more confident in the findings of health and social care research if the study was added to a public register before it started. This reminds us how crucial it is to bring the research community together to achieve the ambitious goal of 100% registration rates for clinical trials.
Join our online workshop on Thursday 21 March to address the barriers to registering research. Our influential speakers will share advice on registration best practice before hosting an expert panellist Q&A session, facilitated discussions and more.
Our response to revisions to the Declaration of Helsinki
The Declaration of Helsinki (DOH) is a statement of ethical principles for medical research involving humans. It was established in 1964 and is regarded as the most important document in the history of research ethics.
A consultation was recently launched by the World Medical Association to ensure the DOH continues to address evolving ethical global challenges.
Our response included input from public contributors who are members of the HRA’s Public Involvement Network, members of NHS Research Ethics Committees, and was developed in consultation with the UK’s Four Nations Policy Leads Group.
Acting on the Tickell review
We welcomed the government’s response to Professor Adam Tickell’s Independent Review of Research Bureaucracy.
The government’s response includes plans to improve efficiency and productivity in research, and highlights work that the HRA has already carried out to reduce bureaucracy. This includes combined review of clinical trials with the Medicine and Healthcare Products Regulatory Agency (MHRA).
Blog: LGBT+ History Month
This February, as part of LGBT+ History Month, the HRA is celebrating the enormous contribution that LGBTQ+ people have made, and continue to make, to the field of medicine and healthcare.
We've published a blog with profiles on some LGBTQ+ pioneers in research and details on the positive action the HRA is taking to demonstrate our unwavering commitment to LGBTQ+ equality.
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Courses now live on NIHR Learn
Last year, we told you that we were moving to a new learning platform, NIHR Learn. The move will be completed next month. Thank you to the researchers, technical assurance reviewers, Research Ethics Committee (REC) and Confidentiality Advisory Group (CAG) members who've made the change.
You can read about why we made the move to NIHR Learn, or contact the HRA learning and development team for further information.
Our Community Committee
Our Community Committee includes people from across our community of Research Ethics Committees (RECs), Confidentiality Advisory Group (CAG) and Public Involvement Network (PIN). It advises the HRA Board.
We want to share more about this exciting group and its impact, and you can now read more about the first meeting.
Our regular update on Clinical trials
Our Clinical trials update is a regular round-up of the latest news on work we’re doing to help make the UK a great place to do clinical trials. Read the February edition and sign up to receive the newsletter.
News from across UK research
Below are some of the latest updates about health and social care research in the UK:
- The National Institute for Health and care Research (NIHR) have launched their national #ARCseminar series. They will hold three events in May, June and July exploring health inequalities. Find out more and register.
- Cancer Research UK has published the full findings from its 2023 Survey of the UK Clinical Research Workforce. With input from over 600 people working across a wide range of roles and all NIHR specialties, it gives insights into delivering clinical research in 2022/23, the issues policymakers should prioritise, and how the past 18 months have impacted the workforce’s morale and future career plans.
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HRA Now - operational updates |
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HRA Now sends you everything you need to know where there are changes to the way we work
Here are some recent important updates you may have missed from HRA Now:
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