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HRA Latest - September 2023 |
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Welcome to HRA Latest with news and updates for those working or involved in health and social care research.
Earlier this week, we hosted a roundtable event with Genomics England and Our Future Health to better understand what is important to people involved in long-term research and what we need to consider if their ability to consent changes.
The event is part of our commitment to create conversations about ethical research issues that matter to people.
Also, this month, we officially launched our new Community Committee. The committee is part of our governance structure and will advise our Board, helping us to make better decisions.
We’re also delighted to announce Bristol Health Partners has become the latest organisation to join our Shared Commitment to Public Involvement in health and social care research.
As always, for regular updates and the latest news, you can follow us on Twitter @HRA_Latest
Matt Westmore
Chief Executive
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Roundtable event on consent and longitudinal research
On Monday we hosted a roundtable event which brought together people with different perspectives, including members of the public, to share their thoughts on how participants of longitudinal research should be treated if they lose their mental capacity during the course of a study.
The event was chaired by Vivienne Parry OBE, science writer and broadcaster, and held in collaboration with long-term research organisations Genomics England and Our Future Health.
Longitudinal research can span decades or even a lifetime, raising ethical and practical issues about the right thing to do for the person taking part if they lose mental capacity, particularly around their ability to consent to continued involvement.
This conversation is a key part of our strategy commitment to include, so that health and social care research is done with and for everyone. We held this conversation about a research issue that matters to people, so that we can better understand what is important to earn their trust. This will inform our work to make it easier to do research that people can trust.
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 Blog: Patient centricity and the UK’s pivotal role in human clinical research
Reflecting on an event held by the British Consulate in Boston, Massachusetts earlier this week, Dr Janet Messer, Director of Approvals at the Health Research Authority has written a blog where she talks about patient centricity and the UK’s pivotal role in human clinical research.
In the blog Janet talks about the UK’s unique ability to support innovative approaches and complex clinical trials through initiatives like combined review, decentralised trials and new quality standards for participant information.
 New Community Committee
We’ve set up a new Community Committee to improve how we involve people in our work.
The committee is made up of people from across our community, including Research Ethics Committee members, a Confidentiality Advisory Group member, and members of the public with direct experience of health research.
It will be chaired by Andrew George, a Non-Executive Director at HRA, and will be a formal part of our governance structure, advising our Board on the decisions we make.
Blog: Why diversity is important in good research
Neelam Patel, Non-Executive Director at the HRA, recently wrote a blog on the importance of diversity in research and why it’s a key part of our strategy.
In the blog Neelam reflects on her personal experience to demonstrate how a diverse range of participants in research ensures everyone can benefit from the results.
We’re also delighted to announce that Neelam has recently been re-appointed as a Non-Executive Director at the HRA, joining us for a second term that will run from 1 April 2024 to 31 March 2027.
Blog: Improving information for research participants
We've recently launched new Quality Standards and Design and Review Principles to improve the information given to people who are invited to take part in research.
Jonathan Fennelly-Barnwell, Deputy Director of Approvals at the HRA, blogs about how the new standards and principles will support people to make better decisions about taking part in research.
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Bristol Health Partners join public involvement pledge
Bristol Health Partners have joined our Shared Commitment to Public Involvement.
The Shared Commitment aims to improve the quality of public involvement across the sector. It builds on work led by the HRA and was developed with other health and social care bodies and members of the public.
Bristol Health Partners is a research partnership that works with the NHS and universities in the West of England.
 News from across UK research
Below are some of the latest updates about health and social care research in the UK:
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HRA Now - operational updates |
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HRA Now sends you everything you need to know where there are changes to the way we work
Our operational updates, HRA Now, includes everything you need to know about changes to the way we work.
Here are some recent updates you may have missed from HRA Now:
Sign up to receive operational updates
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