People centred research
When we asked whether you’d like to help us to look at how we can make research happen in ways we agree will be more ‘people-centred’, we were overwhelmed by the response.
Our new group met for the first time this week, and Public Involvement Manager Barbara Molonyoates and Senior Improvement Delivery Manager Kate Greenwood have blogged about this exciting work.
Making it easier to pay public contributors
We’ve launched new guidance to help organisations and researchers to easily pay public contributors who help shape life-changing health and social care research across the UK. The guide has been developed with the National Institute of Health and Care Research (NIHR) and Health and Care Research Wales, in consultation with patients, members of the public, researchers, and those involved in finance and administering payments for involvement.
When looking back helps you move forwards – reflecting on the HRA at 10
In December 2021 the HRA celebrated its first decade. The occasion was marked with a series of events, including a joint workshop with the Academy of Medical Sciences, whose 2011 report called for the establishment of the Health Research Authority.
The full report of the workshop is available now, and interim Director of Policy and Partnerships Becky Purvis has blogged the highlights.
Increasing diversity in research
Our strategic priority to make sure that health research is done with and for everyone has a key focus on inclusive and transparent research. We’re working in partnership with others to improve access to research, particularly increasing diversity in clinical trials and improving public involvement. We’ll share more in coming months.
Demonstrating the need for this work, this week Nature Medicine wrote about the need to embrace broader inclusion and diversity criteria for clinical trials and in particular not waiting until later, larger cohorts to do so.
Meanwhile, 48% of US cancer clinical trials have no Hispanic or Latin American representation, and 42% do not include a single Black patient, new analysis reveals.
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