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Newsletter
July 2019
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Networks play vital role in launch of new guidelines
We are helping people to live well in the last year of their life, before dying as comfortably as possible, in the place of their choice, through the launch of new guidance approved by the Greater Manchester Health and Social Care Partnership (GMHSC Partnership).
Our Palliative and End of Life Care Network liaised with service users, clinicians, commissioners and providers before writing the guidance, which is called ‘Commitments’. We have recently consulted on the End of Life framework, which will support the delivery of the 'Commitments' document, which will be received by the Partnership's executive later this month.
This is a perfect example of how the networks use their experience of bringing parties together to agree standards and drive-up improvements for our people.
Elsewhere in this month’s newsletter, we have news about our Saving Babies' Lives Lead Champions (pictured above) being nominated for a regional award, and updates from our maternity, respiratory, diabetes and mental health networks, as well as a report from our clinical leaders’ event.
Finally, we welcome the publication of the NHS Long Term Plan Implementation Framework. The networks will have a key role in supporting the clinical delivery of the plan over the coming years. We will be engaging and working with our clinical leaders to support the Partnership's response.
Best wishes
Julie Cheetham, Associate Director
Dr Peter Elton, Clinical Director
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New web-section launched!
Our new web pages have been launched on the NHS's website - click here to take a look.
You will find more information here about our networks and the projects they are involved in to help improve people's lives in Greater Manchester.
Our original website is no longer available, so if you have the URL saved anywhere on your device or PC, please replace it with the new site's address.
 Inspiring day with GM's clinical leaders
The importance of the clinical voice in the health and care world was highlighted at the GMHSC Partnership's second Clinical Leaders’ Summit.
More than 130 clinicians attended the event at Old Trafford football stadium on 14 June for what was an inspiring and informative day.
The day started with a warm welcome from John Herring, Strategic Lead for Organisational Development at the GMHSC Partnership, then Dr Richard Preece, Executive Lead for Quality, introduced the agenda and talked about diversity, asking all clinicians in the room if they are challenging poor behaviour.
He explained how GM is in its fourth year of Transformation funding and some projects will need a defined end, while some will need to continue, building on programmes of continuous improvement.
Guest speakers included Andrew Miles from Glaxo SmithKline, who talked about his role as UK General Manager and Vice President UK and Ireland, and the values of his organisation, Ann Lloyd Keen, a former nurse and MP who encouraged connecting health with politics and accountability, and former GB track cycling team member Denise Hampson, a behavioural economist who gave an inspirational talk about behaviours around certainty and barriers to innovation. There were also breakout sessions either side of lunch on the following areas – Digital, Working With Political Leadership, the Future of Clinical Leadership and Equality & Diversity.
The first clinical leaders’ summit was held in November 2018. A further summit is planned for later in the year.
New sessions to help people with COPD
Respiratory teams in GM are trialling new early education sessions for people recently diagnosed with Chronic Obstructive Pulmonary Disease (COPD), as part of a programme introduced by our Respiratory Network.
The sessions are providing those attending with essential information, encouragement and support to enable the necessary lifestyle changes that slow the progress of the disease and reduce flare ups.
At present, guidance recommends only people with moderate to severe COPD attend education sessions, also known as pulmonary rehabilitation. However, many feel this education is too late and earlier and shorter educational sessions would add additional benefit.
The sessions, the brainchild of the respiratory education group, which is informing the work of the Respiratory Network, will cover information about the disease, flu, exacerbations, physical activity, smoking support as well as help those attending decide their short-term goals.
The pilots have been running in neighbourhoods in north Manchester, Oldham and Wigan in June and July. We will provide a full write-up of findings.
For more details, contact Sue Mason or Rebecca Towns.
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Champions shortlisted for health and care award
Congratulations to the Saving Babies' Lives Lead Champions who were nominated in the ‘Leader Across Boundaries’ category at this year’s GM Health and Care Champion Awards, which were held on July 4.
Latest figures show there were 17 fewer stillbirths in 2018 than 2017, and 32 fewer stillbirths in 2018 than in 2015.
Our Maternity Team has worked closely with the group from nine maternity providers, which has tirelessly raised safety standards. Many of the improvements made are being driven by Saving Babies’ Lives Lead Champions, who each have a comprehensive action plan to address how their own maternity unit is going to meet the requirements of the bundle. They thoroughly deserved their nomination, despite losing out on the night to Karen James and Steven Pleasant MBE from Tameside Council.
Jewels
The Ingleside birth and community centre in Salford has won an award for innovation at the Northern Maternity and Midwifery Festival. The centre was also highly commended in another category, Outstanding Team Award. The Salford-based centre, which opened in 2018, works closely with our Maternity Team, as part of our GM-wide push to improve safety standards. Ingleside is a ‘freestanding birth centre’, situated away from local hospitals and offering a relaxed ‘home from home’ service.
Our Parent-Infant Mental Health clinical lead, Pauline Lee, spoke at an All Party Parliamentary Group meeting about the provision of specialised parent-infant relationship teams,which are multi-disciplinary teams with expertise in working with the important relationship between babies and their parents.
The Parent Infant Partnership UK released a report at the meeting, called 'Rare Jewels', which highlights the benefits of these teams and recommends they are introduced across the UK over the next decade.
Pauline spoke at the meeting about the projects she led at Tameside and Glossop, as well as other initiatives across Greater Manchester, which our team has helped to develop. This work is mentioned in the report and influenced the recommendations made in it.
Pauline said: “There were so many people who were impressed with our achievements and would like to replicate our service provision.”
Pioneering
A much valued member of our network, Pat McKelvey, clinical lead for our perinatal infant mental health network, has been awarded the Louise Emanuel Award “to recognise those who have demonstrated a significant contribution to infant mental health in terms of practice, or through their work in research and policy”.
Pauline Lee, who works with Pat, said:“Commissioners rarely get the limelight because their efforts are not so visible as clinicians and managers, yet their potential contributions cannot be underestimated.
“It is no exaggeration to say that the pioneering perinatal infant mental health work which started in Tameside, and is now being rolled out across Greater Manchester, would probably not have happened without Pat’s foresight and support."
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Guidance for people working with people in last year of life
People who are approaching the end of their lives are to be assured the highest standard of care – thanks to a new document called ‘Commitments’, which has been produced by our Palliative and End of Life Care Team.
The document outlines how people who care for the dying should work closely with that person and their families and carers to plan the care they want.
The aim is for people to live well in the last year of their life, before dying as comfortably as possible, in the place of their choice.
The new guidelines were agreed by the GMHSC Partnership Board and the next steps will see it implemented with direction from the Palliative and End of Life Care Greater Manchester Health and Social Care Partnership Board.
It is hoped this improvement will see in the future an end to different standards of care across the region and between different groups of people.
Skilled
The commitments to palliative care individuals approaching or within the last year of life include:
- People in the last year of their lives should be offered the opportunity to speak to a care professional
- The care they need should be discussed and agreed with them
- Everyone should expect to receive the treatment and support they want, when and where they want it
- Access should be available seven days a week to care or advice from palliative care specialists in any setting, whether at home, hospice, or at hospital
- Training will be available to support a skilled workforce
- Carers should be supported and helped, if they wish
Dignity
People and organisations from across Greater Manchester with experience of supporting people at the end of their lives contributed their views over how things should be improved earlier this year.
GMHSC Partnership chief officer Jon Rouse said: “We want to make sure everyone has access to the right care at the right time – and that is especially important at the end of life.
“That means we need to talk to patients, carers and families about their wishes so people can live well and die in the place they have chosen with peace and dignity.”
Work to implement the commitments has already begun. It includes training that took place during Dying Matters Week for people who work in the NHS or hospices to help them to have conversations about preparing for end of life. Hospices in Greater Manchester will also help drive the improvements in the city region. They have joined forces as the GM Hospices Initiative to collaborate and influence the future of end of life care, working with the new board.
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Third event held to help children and young people
With attention deficit hyperactivity disorder (ADHD) highlighted as a priority area in GM, an event was held to discuss how services for children and young people can be improved.
The third GM children and young people ADHD workshop, organised by the Mental Health team, saw representatives from the GM boroughs reporting back on progress and discussing different areas. This year there was a focus on workforce planning, transition and using quality improvement methodology to reduce the time from referral to treatment.
Petra Brown, chief pharmacist from Pennine Care NHS Foundation Trust, spoke about medication management and alignments to the Greater Manchester Clinical Standards Board (formerly GMMMG) and NICE.
With this information, each locality then built its own workforce planning tool, nicknamed the “playground”, to test out some hypothetical changes in the pathway and the overall effect on workforce.
The afternoon session focused on transition of care from children and young people services to adult services.
Developing
The afternoon opened with Joe Johnson from North West Boroughs, who outlined the needs of young adults with ADHD.
Louise Theodosiou from Manchester Foundation Trust and Sara Barnes from Pennine Care NHS Foundation Trust then followed, presenting the 12 recommendations and points for consideration from the project “Greater Manchester’s Transition Principles & Recommendations: Moving from Children and Young People to Adult services within ADHD and CEDS Pathways”.
The day was rounded off by Paul French, our adult mental health clinical lead, and was chaired by Prathiba Chitsabesan, the GM CYP ADHD Clinical Lead from Pennine Care.
To receive the presentation from the day, hear more about the developing work, or get involved directly in ADHD or transition, please contact Katherine McGuirk and remember to check out the resources available online.
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 Taking action in show of unity
Our Dementia team, as part of Dementia United (DU), welcomed 250 people to the Museum of Science and Industry in Manchester for a GM Dementia Action Week 2019 celebratory event.
Lived experience was very much at the heart of the day with impressive musical performances from Singing for the Brain (see photo above), Together in Song and Manchester Camerata.
The audience of people affected by dementia personally and professionally also heard a poem from Joe Hine and his wife Angela about how being involved in research through “Join Dementia Research” can offer hope. While Harry Cullen gave a moving account of being diagnosed with young onset dementia and then going on to complete the London marathon to raise money for vital research.
We are also grateful to Ann Booth for providing her carer perspective. Ann sits on the DU Carer Expert Reference Group that ensures the DU programme is focussed on what matters to those affected by dementia.
With this rich lived experience of dementia, it was a perfect opportunity for Social Sense to launch their development of the Lived Experience Barometer. This tool will aim to capture what is important to those affected by dementia to inform the DU programme. Social Sense spoke to carers and those living with dementia, like John O'Doherty who sits on the DU Strategic Board, about what they want the barometer to look like.
John said: "To learn about how someone can live well with dementia, you need to know how they lived well before dementia."
Finally, all delegates had the opportunity to learn about what is available to those affected by dementia, including those in the BAME community with a market stall from each locality and the Centre of Wellbeing, Training and Culture.
The Dementia team is grateful to everyone who contributed in making this a successful event with special thanks to Harry Cullen, Helen Hinks and Patrick Ettenes, who advised on making the day dementia friendly.
Spreading the word about prevention
The Diabetes Team's clinical lead Naresh Kanumilli was invited to No 10 Downing Street to attend an event marking the work of people across the country to help those with the condition.
Naresh, pictured above with diabetes specialist nurse Nicola Milne, said: “It was a great honour for Nicola and I to be asked to 10 Downing Street.
"We were very humbled to represent Greater Manchester and all the great work that is being done to improve outcomes for the citizens of GM. As the Prime Minister said 'diabetes has to learn to live with you and not the other way round'."
Our Diabetes Team has successfully coordinated a national programme, Healthier You, to prevent people developing the condition in Greater Manchester.
So far, 20,000 people in GM have responded to an invitation to take part in the Healthier You prevention programme, which helps people make positive changes to diet, weight and physical activity.
On average, people in the city region have lost 3 kgs within 6 months of starting the programme.
Nikki, from Stockport, was diagnosed by her GP as being at risk of diabetes and joined her local Healthier You programme.
She said: “I’ve already recommended it to lots of people and two of my friends have actually started the course already because they were referred to it by their GP. So, I can’t sing its praises enough. I feel that it’s really changed my life.”
Nikki is so pleased she attended Healthier You that she has made a 60 second video which can be found here.
Over the next three years it is expected that 28,000 people will attend the programme across GM and from next month ICS Health and Wellbeing will be GM's new provider. Alongside the behavioural change group work programme there is also a digital offer provided by Oviva.
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