HUMAN SERVICES NEWSLETTER 2-16-23
UPCOMING EVENTS
  You're invited: connect with the rare disease community and resources in your state!
This Rare Disease Day is your chance to connect with other people and families living with rare diseases and supporters in your state. During the event, community members - including patients, caregivers, friends, advocates, healthcare professionals, and elected officials - are invited to come together to make connections, learn about local resources and services to help in your journey with rare disease, and celebrate Rare Disease Day. Don't wait to RSVP as you do not want to miss this opportunity, hosted by NORD, Make-A-Wish New Jersey and our dedicated Rare Action Network volunteers!
Tuesday, February 28, 2023 from 5:00 pm - 8:00 pm Make-A-Wish Castle The Samuel & Josephine Plumeri Wishing Place 1384 Perrineville Road, Monroe Township, NJ 08831 Register To Attend
 Join us for this free, [in-person/virtual] event. All ages are welcome to attend, and we request that everyone register in advance so we can plan accordingly. Attendees are encouraged to wear striped apparel as part of the "Show Their Stripes" campaign, to help raise awareness and generate community-wide conversation on the challenges of living with a rare disease and how everyone in STATE can help make a difference.
The event will include a DJ playing all the greatest hits, face painting, treats from Chick-Fil-A and an array of local organizations in New Jersey that serve people living with a rare disease and their families.
Are you interested in volunteering for this event? Are you an organization that would like to exhibit at this event? Please email action@rareaction.org for more information.
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