NNLM All of Us CEN Newsletter - Inaugural Issue February 2019

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Inaugural Issue - February 2019

PNR Rendezvous – Informational Webinar

Join us for the February 20, 2019 PNR Rendezvous webinar at 1:00pm Pacific Time for “NNLM All of Us Partnership & Inside the Journey.” This one-hour session will describe the NNLM All of Us Research Program partnership and what it means for libraries. It will then highlight the Journey, the All of Us Mobile Education and Enrollment Center’s four-day visit to Hailey, Idaho, hosted by the Hailey Public Library. LeAnn Gelskey, Hailey Public Library director, will share her experience facilitating the Journey’s visit. Come learn what’s inside and how your library can “get on board” and benefit from the NNLM All of Us Research Program partnership. Register here. If you are interested in hosting the Journey at you institution you can see the list of touring cities and contact information here!

All of Us Journey

All of Us Exhibit

All of Us and Community Engagement – Partnerships for Health

Partnerships are vital to the National Network of Libraries of Medicine (NNLM) and are an important part of supporting the health literacy of our communities. The NNLM Middle Atlantic Region (MAR) has conducted several instances of collaboration under our larger partnership with the National Institutes of Health’s All of Us Research Program. Here are some examples of collaborations that our office has had with the All of Us Research Program and how partnerships can support health programs in your community. Read more here!

Superpatients: Patients Who Extended Science When All Other Options Were Gone

Date/Time: February 21, 2019, 2:00 PM ET/1:00 PM CT/12:00 PM MT/11:00 AM PT
Presenter: Dave deBronkart (e-Patient Dave)
Register: Pre-registration is required. Visit the NNLM to register for this webinar.
Presentation Summary: There is a frontier at the edge of knowledge. At that frontier we are constantly building outward. In the past, a lifetime ago, only scientists and academics could extend it, because doing so requires access to knowledge and access to tools. Today, both knowledge and tools are available to many, in ways that simply weren’t possible before the age of “e.” Predictably, when that became possible, activated and motivated people with sickness in the family started adding to what’s known at the frontier.

In his forthcoming book Superpatients, Dave deBronkart, cancer survivor and co-founder of the Society for Participatory Medicine, tells stories of patients who have (literally) extended science when all other options were gone. What do these “superpatients” need and want to achieve their goals in health and treatment? Additionally, what does it mean for the future of medical librarians?


CHIS Spotlight: Taina Evans

Position Coordinator, Older Adults Services

Institution Brooklyn Public Library

Please provide a couple sentences about your position and the work you do. I have worked for BPL since 2007, and work with a network of fifty-nine branches to support and encourage more age-friendly programs: including Creative Aging art classes, Never Too Late to Learn computer classes, and health and wellness workshops. Overall, my role is to help better connect older adults in our community to library services.

Why did you want to receive Consumer Health Information Specialization (CHIS)? Investing in the Consumer Health Information Specialization was essential to building on my ability to field age-related health queries from patrons. I felt confident in my level of authority to make appropriate referrals to health or social service providers while referencing high quality vetted databases through the NNLM website. A bonus of taking the course was the added opportunity to learn about promoting and delivering effective programming that is responsive to the community's health needs.

BPL Tai Chi

How have you used what you learned in NNLM CHIS course(s) in your work? In a general way, I am able to manage the delivery of effective programming that is responsive to community health needs at several different libraries, and one offsite senior center. More specifically, I can connect library users with authoritative, evidence-based sources from NIH, Medline Plus, National Institute of Aging, elevating the library as a platform to connect patrons to health promotion. AND IT IS WORKING! Most recently Brooklyn Public Library was the recipient of the NNLM's All of Us Community Engagement Award.

Why do you feel providing health information is important to your work/community? Promoting a culture of health for patrons anchors the library alongside existing efforts and city-wide initiatives to help improve our neighborhoods’ health outcomes.  It is an important way to educate our patrons about Brooklyn's health disparities.

Any additional tips or advice you have for someone interested in taking NNLM classes to achieve CHIS? I want to encourage all adult librarians to pursue their CHIS certifications to meet the growing health information needs of an aging population. Understanding consumer health trends support safe, welcoming, and stimulating experiences and environments for the 50+ audience, especially for persons with dementia and their caregivers. It also helped me create and manage programs at Brooklyn Public Library that more than ever support lifelong learning, and draws connections to mental and physical activities our older Brooklynites.

ABCs of DNA: Unraveling the Mystery of Genetics Information for Consumers

Consumers need access to information and resources about genetic information in an understandable manner. Librarians working with the public need to be aware of the issues surrounding genetics and resources to assist patrons in locating and evaluating sometimes complex and confusing information. This class provides an opportunity to become better equipped with the resources you need to address the genetic health information needs of your community. Class runs from March 1 – 31 on the Moodle platform. (8 MLA CE) Register here.


Celebrate American Heart Month with the NNLM Reading Club

The NNLM All of Us Community Engagement Network is pleased to announce its three book selections in support of American Heart Month, a February National Health Observance.

  • Heart: A History by Sandeep Jauhar
  • Beautiful Affliction by Lene Fogelberg
  • This Heart of Mine: a Novel by C.C. Hunter

To learn more about each of these titles, download book discussion guides, promotional materials and corresponding heart health information or to apply for a free NNLM Reading Club Book kit, visit the NNLM Reading Club Selection Guide: Heart Health.

ALA Midwinter Preconference on Health Equity

Thanks to support from the All of Us Research Program the American Library Association (ALA) Office for Diversity, Literacy and Outreach Services, the Public Library Association, and the National Network of Libraries of Medicine, Pacific Northwest Region planned and conducted a Preconference titled Implicit Bias, Health Disparities and Health Literacy: Intersections in Health Equity, at the ALA Midwinter Meeting on January 25, 2019 at the Washington State Convention Center in Seattle, WA.  Expert speakers addressed how implicit bias contributes to health disparities and presented examples of community-based partnerships on health issues disproportionately affecting a particular community. Michele Spatz, NNLM PNR All of Us Engagement Coordinator, then explored the importance of leveraging health literacy as a means to advancing health equity. Through facilitated discussions, more than 100 participants shared insights and ideas about ways libraries can deepen their work in health equity with lasting impact.