September 18, 2019

In This Issue:

• FYI Spotlight
• Funding
• Webinars and Other Events
• Resources
• Clinical Trials
• Workforce Development
• @ The Knowledge Center - Recommended Reading

FYI Spotlight

• HHS/National Institutes of Health (NIH), National Heart, Lung, and Blood Institute (NHLBI): Sickle Cell Science: Path to Progress webinar series. Sickle Cell Disease Care in the Emergency Department: Improvement Initiatives and Ongoing Research. Co-sponsored by the HHS Office of Minority Health (OMH) and the American College of Emergency Physicians, the final webinar in this series will highlight current evidence-based best practices and ongoing research designed to improve the care of patients with sickle cell disease (SCD) in the emergency department.
  September 25, 1:00 pm ET. Register.
  
  

Funding

Federal Grants

• HHS/NIH, National Institute on Aging (NIA): Exploratory/Developmental phased award. Tailoring Interventions to Improve Preventive Health Service Use (R61/R33 Clinical Trial Required). Supports the development of electronic health record-based interventions to improve quality of care and health outcomes and reduce health disparities.
  Deadline for Letter of Intent (LOI) is September 28. Learn more. 
  
  
• HHS/NIH, NHLBI: Research project / cooperative agreement. New Epidemiology Cohort Studies in Heart, Lung, Blood, and Sleep Diseases and Disorders (U01 Clinical Trial Not Allowed). Through this funding opportunity, NHLBI aims to establish a new epidemiology cohort of at least 2,000 participants to stimulate research on a wide range of heart, lung, blood and/or sleep research hypotheses.
  Deadline for LOI is May 5, 2020. Learn more.
  
  
• HHS/NIH, NHLBI and the National Center for Advanced of Translational Sciences (NCATS): Exploratory/Developmental phased award / cooperative agreement. Rare Disease Cohorts in Heart, Lung, Blood and Sleep Disorders (UG3/UH3 Clinical Trial Not Allowed). Supports the study of rare or related rare diseases, disorders, conditions or syndromes together based on pathogenesis, affected biochemical, cellular or physiological features or organ system involvement, including the of study hemoglobin disorders rather than only sickle cell anemia or thalassemia.
  Deadline for LOI is May 17, 2020. Learn more.

Non-Federal Grants

• Spirit of St. Louis Women's Fund: 2019-2020 Grants. Supports health and social services projects within the Greater St. Louis area, which includes the City of St. Louis and/or the counties of St. Louis, St. Charles, Jefferson and Franklin in Missouri or St. Clair, Madison and Monroe in Illinois. 
  Deadline for LOI is September 27. Learn more.
  
  
• Robert Wood Johnson Foundation: Expanding Cost Conversations Between Patients and Their Providers. Supports research to test emerging best practices for increasing the frequency and quality of conversations about the costs of care, including out-of-pocket costs to patients and attention to indirect costs of receiving treatment, such as child care, time away from work and transportation to medical appointments.
  Deadline is September 30. Learn more.
  
  
• Association of American Medical Colleges: Nurturing Experiences for Tomorrow's Community Leaders (NEXT) Award. Provides funding to develop or enhance a learning opportunity for students and trainees that seeks to improve community health and eliminate health disparities.
  Deadline is October 1. Learn more.

Scholarships / Fellowships

• Society for Public Health Education: Helen P. Cleary Scholarship. Provides financial support to students enrolled in a health education related degree program to take the national Certified Health Education Specialist (CHES) examination. 
  Application period is September 23-27. Learn more.
  
  
• National Association of School Psychologists (NASP): NASP-ERT Minority Scholarship Program. Provides financial support to full-time or part-time minority students enrolled in or accepted for enrollment in a specialist level (or equivalent) school psychology program.
  Deadline is October 30. Learn more. 

Webinars and Other Events

Webinars

HHS/Substance Abuse and Mental Health Services Administration (SAMHSA): National Recovery Month Webinar Series. Recovery Month is a national observance held every September to educate Americans that substance use treatment and mental health services can enable those with mental and substance use disorders to live healthy and rewarding lives. The presentations in this webinar series will touch upon community resources, personal stories and raising awareness about Recovery Month. Strong Community, Strong Recovery, September 20, 12:00 pm ET.  Recovery Is…, September 25, 1:00 pm ET.  Celebrating Recovery across the Nation, September 27, 1:00 pm ET.

• HHS/NIH, Office of Behavioral and Social Sciences Research (OBSSR): Advancing BSSR to Address National Priorities for Health Care and Population Health Improvement. During this webinar, three diabetes-related BSSR interventions will be used to demonstrate pathways to BSSR integration into health care and population health practice: the Collaborative Care Model, the National Diabetes Prevention Program and DECIDE, a diabetes self-management program.
  September 24, 2:00 pm ET. Register. 
  
  
• HHS/U.S. Food and Drug Administration (FDA), Office of Minority Health and Health Equity: Update on Hematopoietic Stem Cell Transplantation for Patients with Sickle Cell Disease. Join speakers Dr. Courtney Fitzhugh (Investigator, NHLBI) and Jennifer Nsenkyire (Author) for a discussion of Dr. Fitzhugh's current SCD research and Ms. Nsenkyire's experience of being cured of SCD and multiple sclerosis through stem cell transplant.
  September 25, 2:00 pm ET. Register. 
  
  
• The Sickle Cell Consortium and the REdHHoTT Project: Blood Transfusions: What You Need to Know and Do Webinar Series. This five-part, recorded series offers information on the risks and benefits of receiving blood transfusions as part of SCD treatment, and is designed to help attendees learn how to make rational and informed decisions on whether to receive or decline blood transfusions. Watch. 

OMHRC at Local Conferences

The HHS/OMH, Office of Minority Health Resource Center (OMHRC) will be exhibiting at the 2019 CityMatCH Maternal and Child Health Leadership Conference, Make Waves: Intentional Disruption to Advance Health Equity. Visit us at booth #6 to learn all about OMH's and OMHRC's services and programs. September 23-25 in Providence, RI. Learn more.

Conferences

• The New York Academy of Medicine: Registration is open for the 2019 Opioid Symposium, STOP THE SUFFERING: Addressing the Dual Challenge of Overdose and Underdose in the Opioid Overdose Epidemic. Free overdose intervention and prevention training will be provided during this event. 
  September 20 in New York, NY. Register.  
  
  
• Community Anti-Drug Coalitions of America (CADCA): Call for presentations and Ideas Fair displays for the 30th Annual CADCA National Leadership Forum, Prevention, Progress, Possibilites.
  February 3-6, 2020 at National Harbor, Md. Register. 
  Deadline for presentations submission is September 20 and deadline for displays submission is October 25. Learn more.

Other Events

• HHS/Centers for Medicare and Medicaid Services (CMS): Meeting. Action Plan to Prevent and Manage Opioid Use Disorder and Substance Use Disorder and Address Pain Management. During this public meeting, attendees will learn about HHS and CMS activities to address the opioid epidemic, pain management and substance use disorders. Experts from the federal government, advocacy communities, the research, treatment, clinical and medical industry will share key information, with opportunities for public input.
  September 20 in Baltimore, Md. and via live webcast. Register.
  
  
• National Academy of Medicine/Action Collaborative on Clinician Well-Being and Resilience: Twitter chat. The Role of Gender in Clinician Burnout. Use #GenderinClinicianBurnout to share your personal stories about the role of gender in clinician burnout and provide input about how systems-level interventions can improve well-being. 
  September 25, 1:00 pm ET. Learn more.
  
  
• National Academies of Science, Engineering, and Medicine: Workshop. The Consequences of Juvenile Justice System Involvement on the Health and Well-being of Adolescents, Families, and Communities of Color. 
  September 26 in Flagstaff, Ariz. Register. 

Resources

• HHS/Agency for Healthcare Research and Quality (AHRQ): Healthcare Cost and Utilization Project (HCUP) statistical brief. Characteristics of Inpatient Hospital Stays
  Involving Sickle Cell Disease, 2000–2016. This HCUP brief presents statistics on inpatient stays among patients with SCD, including historical trends, characteristics of inpatient stays with a principal or secondary diagnosis of SCD, the presence of pain crises, costs, length of stay and 30-day all-cause readmission rates. Learn more | Read the full brief (PDF).   

Opportunities for Public Comments

• U.S. Department of Commerce/Bureau of the Census: 2020 Census Tribal Consultation Meetings. These consultation meetings are part of outreach and promotion efforts directed at building awareness about the importance of a complete and accurate census count, and motivating response to the 2020 Census within American Indian/Alaska Native (AI/AN) communities.
  September 25, 4:00 pm ET (online) and October 21, 9:00 am MT in Albuquerque, NM. Learn more.
   
• HHS/NIH, All of Us Research Program: Request for Information (RFI) to Inform Tribal Collaborations. Through this RFI, the All of Us program seeks input on Tribal Nation issues and concerns, including the importance of proper handling of AI/AN biospecimens in accordance with Tribal beliefs and traditions, challenges with handling data from self-identified AI/AN individuals and educating the research community on avoidance of stigmatizing research. 
  Deadline is October 31. Learn more.

Clinical Trials

• HHS/NIH, National Institute of Allergy and Infectious Diseases (NIAID): Phase 1 clinical trial. Dose, Safety, Tolerability and Immunogenicity of an Influenza H1 Stabilized Stem Ferritin Vaccine, VRCFLUNPF099-00-VP, in Healthy Adults. NIH researchers seek volunteers age 18-70 years old who have received at least one licensed influenza vaccine from 2014 to the present. Study to be conducted at the NIH Clinical Center in Bethesda, Md. Learn more.

Workforce Development

Community Based Organizations / Non-profits

• National Indigenous Women's Resource Center (NIWRC): Technical Assistance for Tribal Domestic Violence Programs and Shelters. NIWRC will provide up to 3 days of on-site technical assistance for Tribal domestic violence programs and shelters to build Tribal capacity to respond to domestic violence, strengthen advocacy and improve services for survivors of domestic violence, sexual assault, stalking, dating violence and sex trafficking.
  Deadline is September 30. Apply.

Healthcare Professionals

• Georgia State University/Georgia Health Policy Center: Provider Training video series. Reducing Complications of Therapeutic Blood Transfusion in Sickle Cell Disease. This Continuing Medical Education (CME) and Continuing Nursing Education (CNE) activity is designed to increase knowledge and change competency of transfusion practices and strategies for individuals with hemoglobin disorders. Learn more.

@ The Knowledge Center - Recommended Reading

The article "CDC Grand Rounds: Improving the Lives of Persons with Sickle Cell Disease", from the journal Morbidity and Mortality Weekly Report (MMWR), illustrates advances in medicine for people living with the blood disorder. It describes interventions that take place such as screening newborns for sickle cell disease as well as treatments that reduce some complications. Additionally, the article acknowledges difficulties both children and adults with the disease face, including lack of access to care, and includes recommendations for improvement. To view this title or request additional information, search the online catalog.