Rare Brain and Spine Tumor News and Updates

National Cancer Institute sent this bulletin at 03/03/2020 01:38 PM EST

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nci-top_crop_purpleNCI Connections

NCI-CONNECTions: A Rare Brain and Spine Tumor Blog
Marta Penas-Prado

NCI-CONNECT Clinic:

What to Expect

In this video, neuro-oncologist Marta Penas-Prado, M.D., shares the special services patients receive when they visit the NCI-CONNECT Clinic at NIH.

Expert Spotlight: Kathleen Wall

Kathleen W.

Clinical Research Nurse Shares What to Know About Clinical Trials

Kathleen Wall helps people with brain and spine cancers understand and participate in clinical trials, which are designed to find new ways to treat people and improve their quality of life. She shares the information people need to know.

Patient Spotlight: Sarah

Sarah

Cancer Survivor Shares 3 Tips to Enhance Your Visit to NIH

Sarah was 37 years old when she was diagnosed with an ependymoma. She has been coming to NIH for care for four years. Sarah shares her tips to help others.

Managing Your Self-Care

Checking in

Checking In

Learn ways you can manage your self-care after being affected by a brain or spine tumor so you can continue to live fully. Checking in with yourself is asking yourself questions about what you need and want. By doing this throughout the day, you can manage how you feel in any moment. If you feel anger, anxiety, or stress, checking in with yourself may help you feel calmer.
Resources

Questions to Ask About Clinical Trials

Need help understanding trial eligibility, how long the treatment is given, side effects and health risks? Use these questions to ask your doctor to help you determine if a clinical trial is right for you.

Getting to NIH and the Clinical Center

Provides transportation information, patient services, places to stay and how to get around the hospital.

Publications

FDA grants orphan drug designation to zotiraciclib for the treatment of glioma.