EHC Update: Final Reports on Dementia and Fecal Incontinence; Free AHRQ Webinar on Registry Networks

Effective Health Care Program - Helping You Make Better Treatment Choices

The following have been posted to the Effective Health Care Web site.


Final Reports

Free AHRQ Webinar on Registry Networks

Date: April 5, 2-3 PM ET

Speakers:

  • Seth Blumenthal MBA, Program Manager, National Quality Registry Network, American Medical Association
  • Caleb Stowell MD, Vice President of Standardization and Business Development, International Consortium for Health Outcomes Measurement
  • Michelle B. Leavy, MPH, Epidemiologist, Real-World & Late Phase Research Quintiles

 A registry network is a formal community of organizations that use patient registries to measure and improve patient health outcomes. Registry networks provide many potential benefits to participants, including opportunities for knowledge sharing, identifying best practices, and building infrastructure for information sharing among network participants.  While some networks are open to a wide range of clinical domains, others focus on a single or small set of clinical areas.  The goals of the networks also vary, as do their operational procedures and governance structures. They are formed either from the ground up by organizations who recognize the need to analyze data across larger populations than can be found in patient registries or by connecting existing registries. Attendees will learn what registry networks do, how they support the registry community, considerations for international networks and understand the benefits of getting involved. Our speakers will discuss their experiences with registry networks at NQRN and international registry networks at ICHOM and effects of these networks on healthcare quality.

This webinar is part of a series hosted by the Agency for Healthcare Research and Quality (AHRQ) Registry of Patient Registries (RoPR) project. The RoPR is a central, searchable database of patient registries that is integrated with ClinicalTrials.gov. In addition to providing information on existing registries, AHRQ is developing the RoPR as a knowledge portal for patient registries. Work is underway to add information on registry best practices drawn from the widely used AHRQ publication, Registries for Evaluating Patient Outcomes: A User’s Guide, a web-based discussion forum, and tools for supporting the development and use of standardized outcome measures. 

Register at: https://quintilesconferencing.webex.com/quintilesconferencing/j.php?MTID=mf2b16e8bd1ab1f42c92593e6e263f866

 Effective Health Care
http://effectivehealthcare.ahrq.gov/

footer image - no content