June 2, 2015
it take to cures psoriatic disease?
are living with psoriasis or psoriatic arthritis you may wonder: What it will
take to cure this disease?
aren’t the only one asking that question. Nor is it limited to psoriatic
disease. Your elected officials in Washington, D.C. are asking similar
questions – about all diseases. And the answers they are getting are likely to
lead to some real scientific progress for our nation.
2014, the House of Representative’s congressional committee that oversees
public health, food and drug safety, and consumer protection issues began to
ask tough questions about how our nation works to develop cures. This Energy
and Commerce Committee questioned: How do our federal agencies support the
development of cures? Are we allocating enough resources and to the right places
to generate scientific advancement? Can Congress make any changes that will
deliver treatments faster?
have been several discussions in D.C. and at roundtables across the country.
Now a year later, Republicans and Democrats have developed the 21st Century
Cures, a piece of bipartisan legislation that will accelerate how our nation
discovers, develops and bring treatments to patients.
the primary reasons treatments and medications can be so expensive is because
of the significant cost related to research and development. The current draft
of the legislation appropriately adjusts for that by authorizing $10 billion
over a period of five years to establish an innovation fund at the National
Institutes of Health (NIH), starting in fiscal year 2016. The bill also
proposes to increase NIH funding over the next few years, from $31.8 billion in
fiscal year 2016 to $34.85 billion in fiscal year 2018. The current overall NIH
funding is more than $30 billion, of which $13 million is spent studying psoriatic
Century Cures is about more than just adequately funding research. There are
other areas critical to our community addressed by this bill:
- Incorporating patient perspectives into how
the Food and Drug Administration regulates treatments and help address
their unmet medical needs.
- Making it easier to perform clinical trials.
- Supporting continued innovation at our federal
public health agencies.
- Promoting pediatric research.
National Psoriasis Foundation is glad to see the Energy and Commerce Committee
beginning to address these questions. They also were top of mind when we
created our current strategic plan.
are excited about the current solution on the table. …
Read the full blog online HERE.